We are HOME!!!

The last 24 hours have been hectic.  Seeing anyone have a seizure is never fun, let alone a young child and at that your own.  Jackson seems to be coming back to his normal self after having two seizures and meds trying to stop/stabilize him.  Yesterday he slept most of the day do to the fatigue a seizure brings to the body.  Today, we felt like we were trying to tame a wild animal.  Jackson wanted to walk but he was so topsy he couldn’t.  This made it very difficult to keep him happy.

The good news, the doctor said it seems that Jackson’s metabolism is fast causing the seizure medicine he is on to go through his body faster.  So we were sent home with a high dosage 3 times a day.  The doctor also gave us some rectum Valium in-case Jackson did go into a seizure again that lasted longer than five minutes.  That kinda scares me, but I am sure in the moment adrenaline will kick in and allow us to do it!

I have learned a lot about seizures over the last year, most of the learning’s happening in the last 48 hours.  Yesterday, one of the links under my post was another blog on seizures with some very helpful insight to what to do for someone seizing.  Here is a link to the blog, below is the article,

Consider this a public service announcement. Seizures are something most people know very little about. And I’m finding that most people don’t have any interest to learn. The thing is, anyone can have a first unexpected seizure, and if it’s you, hope that someone around knows what to do.

Not everyone having a seizure will froth at the mouth, or even shake or tremble. Some seizures involve just ‘zoning out’ for a short period (those ‘absence seizures’ don’t usually require any immediate medical attention). But most other seizures will involve either going limp and falling to the ground, or going rigid, or both. The body may also shake – either gently or more violently. So what do you do?

• Calm down. Most seizures are not medical emergencies, and your calmness is the best thing for the situation.
• Make sure there’s nothing sharp or hard near the person seizing. They should be in a rather comfortable place where they can’t fall (i.e., not the edge of the Grand Canyon, not a concrete sidewalk, no scissors or knifes nearby)
• DO NOT put anything in their mouth. It is a myth that they could bite their tongue, swallow it, or anything like that. Do not attempt to rescue them from a myth.
• If possible, it’s best for them to be on their side, especially if there are any indications that they might vomit.
• Look for a clock and make a mental note of what time the seizure started. Also note what time it ends.
• When the person stops seizing, they will be completely out of it for anywhere from 5 to 15 minutes, depending on a lot of variables. Do talk to them to judge their level of consciousness. Also note what time they ‘come back’ to themselves.
• If it was a first seizure, the person will need immediate medical attention to rule out potential causes like chemical ingestion and the like. But if the person has had seizures before, they probably don’t need medical attention unless the seizure itself lasted more than 10 minutes, or they don’t ‘come back’ to themselves after 15-20 minutes.

There you have it, folks. It’s really not that hard. The basics are – nothing in the mouth, stay calm. I hope that if my son should have another seizure, and it happens when he’s not with me, that someone around will know what to do. You could be that person – if not to my son, then to someone else.

We are thankful for the prayers and visits.  It really allowed us to see how loved we are and how the power of prayer provides strength. One of our small group leaders came by and brought gifts for Jackson and Josiah.  Joe loves the nerf dart gun and Jackson slept with his singing sea horse all the way home.  Here are some pics from our 4th Hospital visit in 2 1/2 months!  Just got a call today that we have a sleep study in two weeks.  I am hoping that will be the end of a very long medical nightmare and Jackson can return to the healthy boy he was before all this came upon us.